Help wanted (Score so far related)

[IWMP]

Friends on the thread. I don't really feel like talking right now. It's been a difficult day for me. Couldn't keep all the balls in the air. Posting this here so I don't forget to print it out at the link to take to the gastro follow up on Thursday. If I sound "off" in this post it's because I feel "off".

Note: Had a cardio appointment on Monday. She said she's willing to pow wow with the gastro. My position was...fix the gastro issues and go from there. And LOOK at the information below that I bolded...says the exact same thing. Cardio agreed that was the underlying issue. She totally accepts the Roemheld Syndrome as does the gastro. She read to me the EP's clinical notes...he's got vagally mediated afib/rvr documented. All the cardiac testing I've had...shows my heart works fine as a functional pump. Vagally mediated means it's a nervous system issue...not electrical..sinus node misfiring dysfunction. The Vagus nerve is doing what it's supposed to do in this dynamic. I might need more gastro testing at this point. Possible motility issue...there's treatment for that.

What am I a freaking doctor? All these years and NOW they come up with gastrocardiac syndrome-->the Roemheld Syndrome I read about approx. 6 months into the afib journey when no one would listen to me about it ALWAYS happening after a meal. Not a doctor...just a concerned patient and pretty good detective I'd say.

A.I. Overview
Learn more
...
Roemheld syndrome, also known as gastrocardiac syndrome, is diagnosed by a combination of clinical history, physical exam, and tests that rule out other conditions:

Cardiac workup
A cardiologist may perform an EKG, Holter monitor, tilt table test, cardiac MRI, cardiac CT, heart catheterization, electrophysiology study, echocardiogram, and extensive blood work.

Gastrointestinal evaluation
A gastroenterologist may perform a colonoscopy, endoscopy, and abdominal ultrasound.

Symptoms
Roemheld syndrome is characterized by a temporal relationship between cardiac and gastrointestinal symptoms, where the gastrointestinal symptoms cause or worsen the cardiac symptoms. Relieving the gastrointestinal symptoms can also relieve the cardiac symptoms.

Psychiatric evaluation
A psychiatric evaluation may be performed if there are no heart abnormalities or structural heart abnormalities.

Roemheld syndrome is difficult to diagnose because the gastric symptoms can go unnoticed and the cardiac symptoms can be severe. The strongest confirmation of Roemheld syndrome is improvement of cardiac symptoms after treatment of the gastric conditions.

PRINT: Apparently came from here:

https://en.wikipedia.org/wiki/Roemheld_ ... 20subsided.

Hey. Hope you have a better day. sending love your way.
Keep swimming Jersey Girl.

[Jersey Girl]

Gather round children and hear my tale...

So everything changed today. I must have gotten the best sleep ever, woke up feeling NORMAL. I had plans and decided to do them. Drove to base and on the way I was struck by how beautiful the fall leaves were. One road was just lined with cottonwoods that turn the most beautiful bright golden in fall. Thanking the Lord the whole time for letting me see it all. Get on base, go the pharmacy and decide if I still felt better enough (sometimes my energy has drained fast since I've been ill) I'd stop in at the Dollar Tree (Pound Shop UK version) and maybe...just maybe call from the parking lot then pick up a margherta pizza from the brewery because I can pass it on the way home.

Very often the base pharmacy has a line. It goes pretty fast but having been sickly, sometimes it makes me feel anxious waiting. Anyway walk in and there is NO one in line. Place is empty! Pick up my RX and leave...stop on the way to the parking lot to admire an oak tree whose leaves are crimson (!!) red my absolute favorite fall color! I figure I can't pick off any leaves without getting charged with some kind of base vandalism but I would have LOVED to have a branch of those! (I have a thing for nature and trees. I'm sure it never shows on the board. ) Go to the car and drive away and decide I feel just fine (Thanking God for that!) and go on to the Dollar Tree. I just wanted to see if they had this one shape of unfinished wood pieces to put away for next year's craft sales. It's almost as good as getting clearance prices at different places I get craft supplies and that's how I stock up a few things for the following year. So...

I go inside and realize right away that I had better do a restroom stop. I drink water like crazy all day. TMI I know. I go to the restrooms and both doors are locked. I walk away and see if I can find a store worker when this man with a name tag comes my way. He says he's the assistant manager and can unlock the door for me...he stops to put a box in the back room.Then comes out and we walk over to the restrooms. The restrooms are for womever..not male or female. He unlocks the door and I step in, the door starts to close when all of a sudden he opens it again and says WAIT.

Someone's been doing FENTANYL in here, I can smell it.

I get OUT of there immediately. I knew I smelled something but I've never smelled FENTANYL in my life so I didn't recognize it as anything but a smell. Ask him if it's going to do anything to me...he said probably not only if you stayed in there a while and breathed in the smell. (How does HE know that, huh?). I tell him, okay now I don't feel SAFE here. I start to walk away and a lightning bolt of anxiety shoots through my body from head to toe. I can FEEL it. I'm like I've already been so sick for so long and I'm gonna get struck down in a dollar store by some drug I don't even do? That's it? That's my end? But I don't know if it's exposure to FENTANYL or not. I try to talk myself down off the ledge and look for the wood shapes. Didn't really see any but I can't even THINK at that point so I'm like...I'm getting the H out of here. If I feel ill in the car I'm going to call EMS and let them roll an ambulance right up the store and let them deal with Dollar Tree after they take care of me.

Go the car...calm down. Drive across the parking lot/car park to IHOP (restaurant family style) and ask to use the restroom because...tell them about Dollar Tree and their FENTANYL (in Jersey we'd call that putting DT's s**t in the street--exposing their nasty secret.) In and out of the clean restroom with NO FENTANYL in it then back to the car. Driving I feel a little like panic is taking over BUT I say to myself and God...NO, I'm not letting this steal my joy I have today. Then I get to thinking about spiritual warfare and how connected I was feeling to the Spirit and in that case, if you believe in spiritual warfare, Satan is going to do whatever he/it can do to wreck you. Basically...not today Satan! I was feeling so good and you're NOT getting me and you're NOT going to take away my joy today.

I pull off the road and call in my pizza order.

Drive on down to the brewery to pick up the pizza and it dawns on me...if the restrooms are locked at Dollar Tree...someone had to have unlocked it for whoever did the FENTANYL (unless it was a store employee or that manager!) and if they did unlock the door for the FENTANYL user...they would have had to come back to lock it again and before doing that they would have had to OPEN the door to make sure it was empty and they would have had to SMELL the FENTANYL, too.

So what is going on at the Dollar Store? Also...people around here need to exercise caution in public restrooms. When I got home and told the Boy he says that is why this one place he goes to for coffee with the retired guys CLOSED all their restrooms!

So. I had a lovely day. I could have nearly died but instead I got pizza! Ate two slices. It was SO good and my tummy seems perfectly fine with it!

The End.


p.s. The Brewery we go to is kind of like a sports bar thing...a little like an English Pub with a bar and a full menu of something for everyone. I love places like that where you can get just anything everyone likes so it's not just like all Italian or whatever. They brew their own ale (you can see the tanks or whatever they are called). You could sit at the bar, drink your preferred drink, watch the big screens sports stuff and eat I guess...appetizers or a meal, or sit in booths or at tables. I hear the ale is really good...I just don't drink. Had a sip of stout (?) once it was really good! It's whatever you feel like doing also they have outside seating. It's really a nice place. Dress up or come as you are. Bring the kids or no kids.

The Margherita Pizza is LOVELY!!!! <3

Except for the near death experience I had a GREAT DAY!

[Jersey Girl]

I almost forgot to put this here. Today was a day when I felt like I was truly better...hope restored!

I want to get this treadmill. It's on sale and one of the youtubers has a discount code that might even lower the price. The sale price is good without a discount code. This is a good brand and it only weighs 45 pounds! Perfect! Showing it to the Boy for my Christmas present only I want it now while it's on sale. I want the pink one, too!

https://www.flexispot.com/flexispot-2-i ... -treadmill

[Jersey Girl]

Gastro yesterday. Appointment went so well. I reported good days and not so great days as well. I still have not had any nuclear bloating issues and that feels encouraging. I do still get some bloating but not over the top and yet, it does keep me awake until the wee hours some nights/mornings. It's not that I couldn't go to sleep. It's that I won't lay down and chance afib until it's resolved.

Getting prescription probiotics as soon as they're ready for pick up. In the mean time, using nonfat Greek Yogurt daily to pave the way for the RX probiotics. Get the inner compost pile going to encourage good bacteria to live long and prosper.

Shared that I am not gluten intolerant. I can eat the pizza and crust with no problem at all.

Tried scrambled egg and 1/2 english muffin--symptoms. Going to try the muffin alone. Then egg alone. See how it goes.

Cheerios, banana, and milk...no problem! Yay!

Everything I try to add back is a little scary on the first go. The biggest trigger is sugar. Back to reading labels like it's my job. I also suspect fat content...but I don't really eat fatty foods.

Trying this weekend:

Beef stew using lean meat, beef broth, canned green beans and carrots, noodles instead of potatoes, and nothing else. Decided on canned veggies at first because they're mushy.

Good Things:

1. I'm slowly getting crafts done for our show next week. Makes me feel so good to see progress!
2. I learned some new things about the Gastro NP.

She's a Christian.

She makes sour dough bread (came up in conversation) and is going to bring me starter at next month's appointment. She watches the same youtuber I do who makes all kinds of sour dough things and just came out with a cook book.

She's got the same personality type as I do! This came up in conversation as I was sharing about how I feel. I about fell out when she said it. I've never knowingly met another INFJ in my whole entire life. Rarest personality type. Estimated 3%-ish of the entire population on the planet.

Disclaimer: When I say rarest personality type please don't take that to mean...oh aren't I so special. That's not what it's like. It's more like feeling out of place.

[IWMP]

Gastro yesterday. Appointment went so well. I reported good days and not so great days as well. I still have not had any nuclear bloating issues and that feels encouraging. I do still get some bloating but not over the top and yet, it does keep me awake until the wee hours some nights/mornings. It's not that I couldn't go to sleep. It's that I won't lay down and chance afib until it's resolved.

Getting prescription probiotics as soon as they're ready for pick up. In the mean time, using nonfat Greek Yogurt daily to pave the way for the RX probiotics. Get the inner compost pile going to encourage good bacteria to live long and prosper.

Shared that I am not gluten intolerant. I can eat the pizza and crust with no problem at all.

Tried scrambled egg and 1/2 english muffin--symptoms. Going to try the muffin alone. Then egg alone. See how it goes.

Cheerios, banana, and milk...no problem! Yay!

Everything I try to add back is a little scary on the first go. The biggest trigger is sugar. Back to reading labels like it's my job. I also suspect fat content...but I don't really eat fatty foods.

Trying this weekend:

Beef stew using lean meat, beef broth, canned green beans and carrots, noodles instead of potatoes, and nothing else. Decided on canned veggies at first because they're mushy.

Good Things:

1. I'm slowly getting crafts done for our show next week. Makes me feel so good to see progress!
2. I learned some new things about the Gastro NP.

She's a Christian.

She makes sour dough bread (came up in conversation) and is going to bring me starter at next month's appointment. She watches the same youtuber I do who makes all kinds of sour dough things and just came out with a cook book.

She's got the same personality type as I do! This came up in conversation as I was sharing about how I feel. I about fell out when she said it. I've never knowingly met another INFJ in my whole entire life. Rarest personality type. Estimated 3%-ish of the entire population on the planet.

Disclaimer: When I say rarest personality type please don't take that to mean...oh aren't I so special. That's not what it's like. It's more like feeling out of place.

Still got my fingers crossed. Sounding positive.

I saw some of your crafts. They are stunning. It's nice that you are able to build a relationship with your gastroNP. I think that goes a long way to helping.

You are doing amazing. <3

[IWMP]

Was curious so did a Myers Brigg test. I got INFP - T The Mediator.

[drumdude]

Was curious so did a Myers Brigg test. I got INFP - T The Mediator.

That tracks with your personality here!

[IWMP]

Was curious so did a Myers Brigg test. I got INFP - T The Mediator.

That tracks with your personality here!

No idea what that means. Lol.

Edit: I googled it. That sounds about right.

[Jersey Girl]

Still got my fingers crossed. Sounding positive.

Thanks! I woke up FOUR days in a row feeling good! Some symptoms at night but I don't think any of those days I had scary symptoms. Hard to remember.

I saw some of your crafts. They are stunning.

That's a reason I can't remember what day it is! I've been trying to stay busy and so what I can do. Thanks for the comment! I think I'm an average crafter. I love folk art styles so most of what I do is kind of like that. I love trying new things and it seems I'm not happy making just one of something so it's good for me to be able to sell. Been that way (binge crafter) for most of my life. I also like it when people are willing to buy what I make. It's kind of an affirmation that I did something that appeals to others, that I did something good. I can't wait to see if people like the apples and pumpkins on sticks. Really enjoyed making those!

It's nice that you are able to build a relationship with your gastroNP. I think that goes a long way to helping.

You are doing amazing. <3

I felt like the NP and I clicked from the first appointment and I knew she was really listening to me. I was amazed when she confirmed she's an INFJ.

Nicky thank you for your encouragement! It means so much to me that you "hear" me, I can't even tell you. I know I'm doing better and that I need to do the gut repair and get more calories. I'm doing pretty good with both right now! <3

[Jersey Girl]

Was curious so did a Myers Brigg test. I got INFP - T The Mediator.

You are a LOT like me! All this time I've known you...no wonder we understand each other. This is crazy!

Just grabbed this...it'll do just fine. Sorry it's a little sloppy looking but it's an A.I. capture type thing.

INFP

A.I. Overview
Learn more
...
Embracing the INFP Personality Type — Mediator: Exploring ...

INFP is a personality type in the Myers-Briggs Type Indicator (MBTI) that stands for Introverted, Intuitive, Feeling, and Perceiving. People with this personality type are often described as idealists or mediators. They are known for being:

Creative
INFPs are creative problem solvers who are imaginative and enjoy daydreaming.
Idealistic

INFPs are perfectionists who are driven to make the world a better place. They are motivated by their own values and are curious about the values of others.

Empathetic
INFPs are sensitive and have strong emotional responses to art, music, nature, and people. They are known for being sentimental and nostalgic.

Introverted
INFPs derive energy from their inner world and assess information intuitively. They are often quiet and unassuming.

Curious
INFPs are deeply thoughtful and curious learners. They are always eager to help a good cause.

Future-oriented
INFPs are driven to meet the needs of others and strive for personal growth.

INFJ

A.I. Overview
Learn more
...
Myers-Briggs Personality Types: INFJ – Poet on page and stage ...

The INFJ personality type is a Myers-Briggs type that stands for Introverted, iNtuitive, Feeling, and Judging. People with this personality type are often described as:

Idealistic: They have a strong sense of values and empathy, and believe the world can be a better place.

Empathetic: They are good at understanding people's emotions and are often good listeners.

Introverted: They tend to be energized by alone time and need time to recharge after social situations.

Intuitive: They have a strong intuition and are able to detect patterns and draw conclusions.

Big-picture thinkers: They can be detail oriented, but are also big-picture thinkers.

Creative: They are passionate and creative people who value harmony and building relationships.

Compassionate: They are compassionate and deeply caring.

INFJs are often private and can be difficult to get to know. They value honesty and authenticity, but can struggle to be vulnerable. They also dislike conflict and can become dismissive during confrontations.


See if you can find a good Kiersey Temperament Sorter test and do that when you have time. I want to see what your results are without telling you my own.