Help wanted (Score so far related)

[IWMP]

My. God.

The thyroid medication that I take apparently contains mannitol.

I'll be going to the pharm on Thursday or Friday to pick up RX's. I'm going to call in advance and have the pharmacist go through my regular meds one by one to see if any of them contain alcohol sugars.

Don't know if this will lead to a dead end or a break through, but I'm doing it. Not one single provider at the Gastro has ever gone through my meds even when I reported a reaction to xylitol and I didn't know what that was or why I reacted to it until the NP explained.

Score so far: 2 supplements and 1 regular RX med contain alcohol sugars. This has got to be some kind of bad joke.

Oh wow, good spot. These sugars are bad for the gut bacteria too. They cause the bad bacteria to populate because they like the artificial sugars and they overtake the good flora. That's why I prefer my kids have full sugar fizzy drinks. I tell them fake sugar is bad for them. Our bodies are built to process real sugar. But I have noticed even full sugar drinks nowadays have artificial sugars mixed in.

I have dysautonomia. So I can drink lots of water and it won't hydrate me. When I get dizzy and feel like I'm going to pass out I shot like half a teaspoon of salt and then down water after and it helps. The salt helps the water be absorbed.

It would be awesome if changing up your medications can help towards your healing. I react to fillers/excipients. Different brands have differences in the ingredients. One brand of liquid levothyroxine had caustic in it. The other didn't, I couldn't tolerate the one with caustic.

[Jersey Girl]

My. God.

The thyroid medication that I take apparently contains mannitol.

I'll be going to the pharm on Thursday or Friday to pick up RX's. I'm going to call in advance and have the pharmacist go through my regular meds one by one to see if any of them contain alcohol sugars.

Don't know if this will lead to a dead end or a break through, but I'm doing it. Not one single provider at the Gastro has ever gone through my meds even when I reported a reaction to xylitol and I didn't know what that was or why I reacted to it until the NP explained.

Score so far: 2 supplements and 1 regular RX med contain alcohol sugars. This has got to be some kind of bad joke.

Oh wow, good spot. These sugars are bad for the gut bacteria too. They cause the bad bacteria to populate because they like the artificial sugars and they overtake the good flora.

Yep! The bad bacteria feast on artifical sweeteners. And...remember we discussed how Levo tablets are poorly absorbed by Hashomoto's patients and liquid is best? That could be on account of the mannitol used as a filler. I might have a good case now for the liquid Levo. Feeling positive about that!

I also stopped using sweet n' low artificial sweetner in my tea about 2 weeks ago. It was irritating my gut. I use a small amount of table sugar now. I might try my pure maple syrup in tea just haven't done it yet. I won't use honey because it's high Fodmap.

That's why I prefer my kids have full sugar fizzy drinks. I tell them fake sugar is bad for them. Our bodies are built to process real sugar. But I have noticed even full sugar drinks nowadays have artificial sugars mixed in.

I think you're exacty right. And so long as we aren't taking in a crazy amount of sugar it's perfectly fine. Amazing how we are warned about too much sugar and that could be related to sellers of artificial sweetners trying to market their product to us. It's so good you are educating your children about these additives v. real foods.

I have dysautonomia. So I can drink lots of water and it won't hydrate me. When I get dizzy and feel like I'm going to pass out I shot like half a teaspoon of salt and then down water after and it helps. The salt helps the water be absorbed.

That's how the sugar alcohols make me feel. Some lower your blood pressure, others act as diuretics causing dehydration and mess up your electrolytes. I'm going to tell a scary story at the end of this I never told on the thread.

It would be awesome if changing up your medications can help towards your healing. I react to fillers/excipients. Different brands have differences in the ingredients. One brand of liquid levothyroxine had caustic in it. The other didn't, I couldn't tolerate the one with caustic.

I'm after the liquid Levo! The pharmacists where I go are SO good to work with. One even knows me by my first name now.

Here's a story that I never told on the board because I thought it would be too alarming and didn't want anyone to worry about me. It only happened once.

I don't recall what I ate or took that day about 6 or more months ago? It could have had something to do with the kidney stuff. So many things happened to me that much of it is a blur to me. It was late at night and I can't recall what got me out of bed, abdominal pain or heart palpitations or what, but I got out of bed visited the bathroom and I don't recall if I took any medication or what I did. I know I felt horrible and dizzy. You would think a normal person would call for help right? No, I went back to the bedroom (to die?) and on my way there I staggered to the right and hit the wall.

That was one of the scariest things that happened to me in the past 2 years.

That's how the alcohol sugars make me feel. Weak, dizzy and "out of it". I'll be better today and am not taking anything with an "itol" in it and darn those chewable tablets were so tasty, too!

Question: Why is a patient having to do all this detective work...what exactly is the doctor for?

[IWMP]

Oh wow, good spot. These sugars are bad for the gut bacteria too. They cause the bad bacteria to populate because they like the artificial sugars and they overtake the good flora.

Yep! The bad bacteria feast on artifical sweeteners. And...remember we discussed how Levo tablets are poorly absorbed by Hashomoto's patients and liquid is best? That could be on account of the mannitol used as a filler. I might have a good case now for the liquid Levo. Feeling positive about that!

I also stopped using sweet n' low artificial sweetner in my tea about 2 weeks ago. It was irritating my gut. I use a small amount of table sugar now. I might try my pure maple syrup in tea just haven't done it yet. I won't use honey because it's high Fodmap.

That's why I prefer my kids have full sugar fizzy drinks. I tell them fake sugar is bad for them. Our bodies are built to process real sugar. But I have noticed even full sugar drinks nowadays have artificial sugars mixed in.

I think you're exacty right. And so long as we aren't taking in a crazy amount of sugar it's perfectly fine. Amazing how we are warned about too much sugar and that could be related to sellers of artificial sweetners trying to market their product to us. It's so good you are educating your children about these additives v. real foods.

I have dysautonomia. So I can drink lots of water and it won't hydrate me. When I get dizzy and feel like I'm going to pass out I shot like half a teaspoon of salt and then down water after and it helps. The salt helps the water be absorbed.

That's how the sugar alcohols make me feel. Some lower your blood pressure, others act as diuretics causing dehydration and mess up your electrolytes. I'm going to tell a scary story at the end of this I never told on the thread.

It would be awesome if changing up your medications can help towards your healing. I react to fillers/excipients. Different brands have differences in the ingredients. One brand of liquid levothyroxine had caustic in it. The other didn't, I couldn't tolerate the one with caustic.

I'm after the liquid Levo! The pharmacists where I go are SO good to work with. One even knows me by my first name now.

Here's a story that I never told on the board because I thought it would be too alarming and didn't want anyone to worry about me. It only happened once.

I don't recall what I ate or took that day about 6 or more months ago? It could have had something to do with the kidney stuff. So many things happened to me that much of it is a blur to me. It was late at night and I can't recall what got me out of bed, abdominal pain or heart palpitations or what, but I got out of bed visited the bathroom and I don't recall if I took any medication or what I did. I know I felt horrible and dizzy. You would think a normal person would call for help right? No, I went back to the bedroom (to die?) and on my way there I staggered to the right and hit the wall.

That was one of the scariest things that happened to me in the past 2 years.

That's how the alcohol sugars make me feel. Weak, dizzy and "out of it". I'll be better today and am not taking anything with an "itol" in it and darn those chewable tablets were so tasty, too!

Question: Why is a patient having to do all this detective work...what exactly is the doctor for?

I've found doctors to be unhelpful. I had a good doctor but he retired. I had to convince the doctor to give me levothyroxine because I knew my tag was too high for pregnancy but he nearly never gave me it and even with the dose he gave me it still wasn't right. So this whole pregnancy my thyroid hasn't been optimal. I get liquid because tablets make me ill. The cause severe abdominal pain and headaches. There are far fewer ingredients. There is one brand that has 3 ingredients but I can't get that in this country. They all have glycerin in though which can cause a bit of tummy upset but I've not noticed any symptoms with the mercury pharma brand. Hopefully they will let you try the liquid though. It's definitely more tolerable for me.

It sounds like you've learned a great deal about what makes you worse and it's good that you trust that. You need the doctors on board. You must have gotten a fright that night.

Dysautonomia and EDS can cause blood pressure drops. I have symptoms of POTS which is connected to these issues but I've never had a tilt table test so not diagnosed but my heart rate can go from about 90 to 150 in seconds. My mum was like wth? When she saw the HR thing. I've mentioned it to doctors, they aren't bothered. I think once you have an EDS or fibromyalgia diagnosis (I have both) it's like everything is to do with that and you kinda have to get on with it in a sense. I do have a lovely physiotherapist.

POTS might be something to look at too because COVID caused a lot of people to develop POTS.

Fingers crossed you can get those sugars out. The definitely could be reeking havoc when you are already sensitive to gut changes.

I like earl grey with honey which is nice than tea with honey in my opinion. Have you ever tried earl grey? Not sure where that fits on the scale of reactions. I don't drink that with milk. It might be nice with syrup.

[Jersey Girl]

I've found doctors to be unhelpful. I had a good doctor but he retired. I had to convince the doctor to give me levothyroxine because I knew my tag was too high for pregnancy but he nearly never gave me it and even with the dose he gave me it still wasn't right. So this whole pregnancy my thyroid hasn't been optimal. I get liquid because tablets make me ill. The cause severe abdominal pain and headaches. There are far fewer ingredients. There is one brand that has 3 ingredients but I can't get that in this country. They all have glycerin in though which can cause a bit of tummy upset but I've not noticed any symptoms with the mercury pharma brand. Hopefully they will let you try the liquid though. It's definitely more tolerable for me.

I wonder if the tablets contained mannitol and that's what caused your pain and headaches? That could certainly be the case because abdominal pain is one of the side effects of mannitol at least for those who are sensitive to it. I had no idea it was used in prescription meds or supplements. I'm getting rid of every bit of it. Also found out that one of the toothpastes I have "Magic Mud" contains xylitol.

Everything artifical is getting cut out and I'll have the pharmacist go through everything I take that is RX'd while I go through everything else though I think he can help me with those, too. Hopefully my gut will calm down even more. You've mentioned sensitivies I've never even heard of. I don't wish reactions on anyone else but at the same time it makes me feel I'm not alone in this trial and error detective work. Lord knows my Gastro doc can't help me with this.

I'm going to get the liquid Levo if I have to pay out of pocket. My gut must be so damaged by now and I don't need the cumulative effects of sugar alcohols building up in there over time.

It sounds like you've learned a great deal about what makes you worse and it's good that you trust that. You need the doctors on board. You must have gotten a fright that night.

It was frightening for sure. I thought I was going to faint. I've felt faint but never actually fainted in real life...have you?

Dysautonomia and EDS can cause blood pressure drops. I have symptoms of POTS which is connected to these issues but I've never had a tilt table test so not diagnosed but my heart rate can go from about 90 to 150 in seconds. My mum was like wth? When she saw the HR thing. I've mentioned it to doctors, they aren't bothered. I think once you have an EDS or fibromyalgia diagnosis (I have both) it's like everything is to do with that and you kinda have to get on with it in a sense. I do have a lovely physiotherapist.

That is scary when the heart beats that fast, isn't it? When in Afib/rvr I've seen numbers as high as the 190's and I think once over 200 bpm. I don't think these conditions are well understood. Just like Hashimotos. I don't think docs realize the extent to which it effects the body.

POTS might be something to look at too because COVID caused a lot of people to develop POTS.

To this day, I still have in the back of my mind that this started with COVID. The first noticeable event I ever had happened 3 months after I had COVID. It seems like it's hard for researchers to pin down but I don't see why that cytokine storm couldn't happen in the gut. I know from reading research that many people developed gastric problems after COVID and I think that one of them was me.

Fingers crossed you can get those sugars out. The definitely could be reeking havoc when you are already sensitive to gut changes.

They're all out right now in terms of supplements, tackle the RX meds and keep looking around for anything else I take by mouth like the toothpaste I mentioned. No more. Good bye. Maybe one day I'll be able to tolerate but that's NOT now. I'm babying my gut like it's my job now...because it is.

I like earl grey with honey which is nice than tea with honey in my opinion. Have you ever tried earl grey? Not sure where that fits on the scale of reactions. I don't drink that with milk. It might be nice with syrup.

I think I've had Earl Grey before but I don't recall if I reacted to it in any way. I do know that decaf English Breakfast tea makes my heart beat weirdly. What the heck? Just being careful to use a minimal amount of white sugar right now. I'll test out syrup and honey before long.

Went to get my hair cut today. Even my hair lady (who became a family friend over the years) noticed that I seemed so much better! Both my kids have noticed as well. Hearing that other people notice a change in me really encourages me to keep going and do the best I can to keep healing. I was like a wet dish cloth before but I'm not now. Not 100% but SO much better.

I drove past the shops that I mentioned in a post where there is William Sonoma, Pottery Barn, Ulta...basically kind of high end/posh stores. It's so nice there with sidewalks you can walk around and go into the shops. I got that excited feeling again and I'm planning to go there one afternoon next week. I think I have the energy for 2 shops. WS and PB and they are close together. It's not like I shop there all the time or anything. You know me, I'm not in the least bit posh. It's just pleasant to go in and see what they have. I might be able to pick up the special pancake/waffle mix I get the kids for their Breakfast in a Bag gift for C'mas. It'll keep just fine. I remember going in there on my very last nerve to pick up the order last year being almost in tears wondering if I might pass out in the store but I wanted so much to do it for our kids. Now I know I can go in there and enjoy a little browse around...it's very cheerful and pretty in both stores, and fall is the best time to visit before the holiday crowds begin.

It's so good to know I can do it!

p.s. Do you lose your energy with the gut stuff, too? I think you said you do. Love you, girl. No ladders for you!

[Jersey Girl]

Riddle me this: Of what use is it to anyone to take a Lactase product to fend off gut reactions to lactose when the tablets contain something known to trigger the gut? It's craziness! And what if the people taking lactase weren't really sensitive to dair but only the sugar alcohols in the tablets?

I got the new lactase tablets today with no sugar alcohols. Tried one tablet. So far so good.

I am a human science experiment and my lab is in the tummy! All true if not a little creepy.

[Jersey Girl]

Just going to bold a few possible red flags and helpful guidance. These are just search results. The pharmacist will know for sure. At the very least I want to switch to the thyroid med that is recommended below that only contains 3 ingredients and is in capsule form. Same or similar to the liquid version.

As for the mannitol I think I should go scorched earth on that ingredient in foods and meds, and avoid it regularly at least for now.

Doesn't seem like lactose would be advisable for someone healing the gut. No real clue in that regard. Probably such tiny amounts as to be insignificant.

BP med

Active ingredients: losartan potassium

Inactive ingredients: microcrystalline cellulose, lactose
hydrous, pregelatinized starch, magnesium stearate,
hydroxypropyl cellulose, hypromellose, titanium dioxide, D&C
yellow No. 10 aluminum lake and FD&C blue No. 2 aluminum
lake. COZAAR 25 mg, COZAAR 50 mg, and COZAAR 100 mg
may also contain carnauba wax.

Apparently the carnauba wax is there to help the pills slide through the machinery.

Statin med

Here is a list of common inactive ingredients found in different generic atorvastatin products, derived from several FDA and manufacturer documents:

Binders and fillers
Calcium carbonate
Lactose monohydrate
Microcrystalline cellulose
Hydroxypropyl cellulose
Calcium aluminometasilicate
Amino methacrylate copolymer
Disintegrants
Croscarmellose sodium (NF)
Lubricants
Magnesium stearate (NF)
Sodium stearyl fumarate
Coatings and polishing agents
Opadry White YS-1-7040 (brand-name Lipitor coating) or a generic equivalent containing hypromellose, polyethylene glycol, talc, and titanium dioxide
Polyvinyl alcohol
Candelilla wax (FCC)
Surfactants
Polysorbate 80 (NF)
Other inactive ingredients
Titanium dioxide
Talc
Colloidal silicon dioxide
Simethicone emulsion
Lecithin This is good for the gut.

Levothyroxine

Yes, mannitol is used as an inactive ingredient in some generic levothyroxine tablets. The inactive ingredients, also called excipients, can vary depending on the manufacturer.

Generic levothyroxine formulations with mannitol

Some generic and brand-name levothyroxine products that include mannitol are:

Euthyrox: This brand contains mannitol along with other ingredients like citric acid, corn starch, and gelatin.
Teva levothyroxine (tablet): At one time, this brand included mannitol. Though it has been reformulated, some past versions contained mannitol, maize starch, and other ingredients.

Other generics: The specific combination of inactive ingredients will differ among manufacturers. A generic levothyroxine formulation might contain mannitol as a filler or binder alongside other ingredients such as microcrystalline cellulose, crospovidone, and magnesium stearate.

Why inactive ingredients matter

For most people, the differences in inactive ingredients between levothyroxine products are not a concern. However, for some individuals, they can be important for several reasons:

Sensitivities or allergies: Some patients have reported adverse reactions or sensitivities to specific inactive ingredients, such as dyes, gluten, or lactose.

Absorption issues: The excipients can influence how the active drug is absorbed by the body. This can be a major issue for a narrow-therapeutic-index drug like levothyroxine, where even small changes in absorption can affect thyroid hormone levels.

Brand switching: In rare cases, switching between levothyroxine formulations with different inactive ingredients has caused biochemical changes in patients.

Mannitol-free alternatives

If a patient has an allergy or sensitivity to mannitol, they can speak with their doctor or pharmacist about alternative levothyroxine options, such as:
Liquid formulations: Products like Tirosint-SOL or Thyquidity are available in liquid form and generally have fewer inactive ingredients.

Capsules: Tirosint capsules, another alternative formulation, contain only gelatin, glycerin, and water.

Other brands or generics: By consulting the package insert or product information, you can find a formulation from a different manufacturer that does not contain mannitol.

More on Levothyroxine:

There is no single list of inactive ingredients for generic levothyroxine because the formulation varies depending on the manufacturer. The best way to know the specific ingredients is to check the packaging or the medication guide for the product you are using.

Common inactive ingredients in generic levothyroxine tablets often include:
Fillers/Diluents:
Lactose
Microcrystalline cellulose
Corn starch
Mannitol
Binders:
Povidone
Acacia
Lubricants:
Magnesium stearate
Disintegrants (to help the tablet break apart):
Sodium starch glycolate
Crospovidone
Other additives:
Colloidal silicon dioxide (anti-caking agent)
Sucrose
Butylated hydroxyanisole (preservative)
Sodium lauryl sulfate
Various color additives to identify different strengths

Ingredients in alternative formulations
If you need to avoid certain ingredients, such as lactose or gluten, it is important to check the ingredients of alternative levothyroxine products.
Tirosint (capsule): This brand-name capsule is often used by people with sensitivities because it has a very simple inactive ingredient list: gelatin, glycerin, and water.

Reformulated Teva tablets: After previous issues, Teva reformulated their levothyroxine tablets to be lactose-free.

Levothyroxine Sodium Capsules: Some capsules contain only levothyroxine, gelatin, glycerin, and water, similar to Tirosint.

Importance of inactive ingredients
While inactive ingredients do not have a therapeutic effect, they can affect how the active drug is absorbed. This is why thyroid function can change when switching between different brands or generic versions. If you notice a change in symptoms after switching manufacturers, talk to your doctor.

[Jersey Girl]

Documentation reminder for myself.

Prescription drugs often use sugar alcohols as inactive ingredients to improve taste, stability, or texture, especially in liquid or chewable formulations. Common sugar alcohols found in these medications include mannitol, xylitol, and sorbitol.

Medications containing mannitol

Mannitol is used as a sweetening agent and a diluent (a bulking agent), and it can also function as a diuretic.

It is often found in:

Chewable tablets: For example, Montelukast Sodium tablets for allergies and asthma.

Orally disintegrating tablets (ODTs): Such as Ondansetron Hydrochloride, an anti-nausea drug.

Sublingual tablets: Some formulations of Buprenorphine Hydrochloride, used to treat opioid addiction.

Intravenous solutions: Mannitol injections are used as a diuretic to reduce intracranial and intraocular pressure.

Inhalation powders: Inhaled mannitol, under brand names like Bronchitol, is used for cystic fibrosis.
Medications containing xylitol

Xylitol is a sugar substitute used for its sweetening properties and is often present in liquid and orally disintegrating medications.

Examples include:
Orally disintegrating tablets: Alprazolam and Clonazepam (benzodiazepines) are formulated this way.

Liquid suspensions: Gabapentin (for nerve pain and seizures) and some formulations of Meloxicam (an NSAID).

Orally disintegrating tablets: Various strengths of Clozapine, an antipsychotic.

Medications containing sorbitol

Sorbitol is another sugar alcohol widely used in liquid medications and chewable tablets, and it has a known laxative effect at high doses.

Prescriptions containing sorbitol include:

Liquid formulations: Oral solutions of Amitiza (lubiprostone) and various cough syrups.

Extended-release tablets: Some versions of Lithium Carbonate.

Orally disintegrating tablets: Medications like Ondansetron Hydrochloride and Risperidone.

Irrigating solutions: Solutions used for surgical procedures.

How to check for sugar alcohols

Sugar alcohols are listed as inactive ingredients, or "excipients," on drug labels.

Consult the manufacturer: If you have an allergy or intolerance, contact the drug manufacturer or a compounding pharmacist to determine if a specific product contains sugar alcohols.

Review the package insert: The full list of ingredients is typically available in the package insert that accompanies the medication.

Search online databases: Websites like Drugs.com or DailyMed have searchable databases of inactive ingredients for thousands of medications.

[IWMP]

Hi.

Teva and I aren't friends.
I am pretty sure acacia is problematic for me. Artificial sugars give me reflux. I don't think they make me ill.

Tirosint is what I'd have liked but isn't available here.

Looking at those ingredients that's a heck of a lot of excipients.
I can't tolerate one prescription with them let alone multiple. I stagger medications as far apart as possible.

Do you mind if I ask why you are taking statins?
I mean, I probably have an idea of why but I was under the impression that statins might be under the spotlight at the moment.

I do get that feeling (the name isn't coming to me right now)... It's not passing out but there's a feeling.. the name will come to me... Its the sensation that I could pass out but it doesn't actually happen. Like a lightheaded wooooo feeling and my body can suddenly feel very heavy. There's a name for it.... Presyncope. One of the joys of having EDS.

When my heart rate is up, I feel heavy and exhausted and out of breath. And I can feel the beating. I need to lay down. It passes with laying down. It's related to position for me. Heart rate goes up if I stand up.

I'm glad people are noticing you are feeling more yourself. It will boost you to have some positivity. I hope the shop trips go well. Do you follow spoon theory? Where you have so many spoons and what you do uses so many and you kinda of have to save some spoons for planned tasks? I don't use spoons in my mind but I do have an awareness that if I've got a big job to do then I'm not really going to put to much else in my plans beyond the stuff that needs to be done daily. But I also have this thing where if I need to get something done but I lack energy or motivation then I will deliberately arrange something that forces me to have no choice but to push through. Like with the bedroom, I set myself a rule that I was not putting that new bed into an unfinished room and it forced me to do finish decorating because I had already given my daughter the big bed. Or like if I need to clean but I'm struggling, I will invite a friend over and then I have no choice but to get on with it because I also have this thing where I need the place to be decluttered and cleaned before anyone comes in. I don't like ornaments or rugs and the pictures I put up are very minimal. Kids have all sorts in their rooms and they have rugs because that is their space and they don't need to be denied those things because they overwhelm me. But we are also very much a kids play in the living room family. They often bring toys down and every so often they get boxed up and put back up in their rooms And by the next day a whole different set of toys or craft supplies appear. But if someone comes over, I want the toys away and preferably organised. Anyway I'm rambling.

This is the excipients in the levothyroxine tablet form that made my guts hurt like crazy:

sodium citrate, lactose, maize starch, acacia powder and magnesium stearate. (Accord, advanz pharma)

Liquid form I don't tolerate (not as bad as tablet form) (Teva),
Can't find the ingredients at the moment but I'm sure the only difference was that it also contained Sodium Hydroxide.


I can tolerate zentiva liquid :
Glycerol
Citric acid anhydrous
Sodium methyl parahydroxybenzoate (E219)
Citric acid 10%
Purified water

I can also tolerate mercury pharma liquid but couldn't find the ingredients at this time. I might edit later when I look at my packaging.

I ask for everything in liquid form because generally liquids don't have a crap ton of ingredients. I have a long history of refusing to take medication because of side effects so I think that's why they are willing to give me liquid but the pharmacy won't give me liquid unless it states clearly that it needs to be liquid.

Do you think the mannitol in toothpaste would cause a reaction? I don't think what we use has any in. I need to get my son SLS free toothpaste. He gets mouth ulcers. As does my husband. I have a sneaky feeling they both might be better to avoid gluten but waiting to see that the pediatrician says.

Still rooting for continued progress for you! Willing it to the universe <3

I think because I've had a lifetime of gastric issues I don't really know what it feels like to not have gutty things going on. I started with bowel issues from my earliest memories. I actually thought it was normal to not poop for weeks at a time so didn't tell anyone. I know that sounds crazy and you wouldn't believe me, I didn't eat much though. When I was older I could only go when I had my period. I can explain but I feel like I'm talking about myself a lot right now. Had a transit study that showed I was full to the brim lol.

[Jersey Girl]

Nicky I'll give you a decent reply later. About to run out the pharm. Statins because my blood labs showed high cholestorol way back when. It's right in line now. All my labs are in line and "normal".

[Jersey Girl]

Levothyroxine RX - mannitol CONFIRMED by pharmacist

Pharm tech who waited on me at the register has SIBO. We chatted about it and I've got the name of her gastro practice. She feels she's in good hands there. I gave her the FD Gard as recommendation in return. She's lost 15 pounds in 2 months.

She paid attention to what I said about mannitol and when the Pharmacist confirmed I guess it set off alarms for her because she said she's going to go through her meds too...she reacts to sugar alcohols like I do. Now, at the very least, she knows it's in her own Levo RX.

Small world. Small very sad world when people are suffering so much and it hurts to do the very thing you need to do every day to stay alive--eat.